A place for support, information, and understanding
The Association was established with the aim of improving healthcare and the social position of individuals in the Republic of Serbia affected by CIDP (Chronic Inflammatory Demyelinating Polyneuropathy), GBS (Guillain-Barré Syndrome), and MMN (Multifocal Motor Neuropathy), through information sharing, education, public advocacy, integration, and inclusion, in accordance with applicable legislation and the National Strategy for the Improvement of the Status of Persons with Disabilities and Rare Diseases, as well as through cooperation with related associations and organizations both domestically and internationally.
Read the latest postsConditions We Support
We provide support and information for patients living with rare neurological conditions.
Guillain-Barré Syndrome (GBS)
GBS is an inflammatory disorder of the nerves outside the brain and spinal cord (peripheral nerves). It is characterized by the rapid onset of numbness, weakness, and often paralysis of the legs, arms, breathing muscles, and face. Paralysis is ascending, meaning that it travels up the limbs from fingers and toes towards the torso. Loss of reflexes, such as the knee jerk, is usually found. It is characterized by the rapid onset of numbness, weakness, and often paralysis of the body. It affects 2 in 100,000 individuals per year.
CIDP — Chronic Inflammatory Demyelinating Polyneuropathy
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is the chronic form of GBS. It is a rare disorder of the peripheral nerves characterized by gradually increasing sensory loss and weakness associated with loss of reflexes.
MMN — Multifocal Motor Neuropathy
MMN is a rare disorder in which focal areas of multiple motor nerves are attacked by one’s own immune system. Typically, MMN is slowly progressive, resulting in asymmetrical weakness of a patient’s limbs. Patients with MMN can have other symptoms, including twitching, or small random dimpling of the muscle under the skin which neurologists call fasciculations.
Contact Us
If you have been diagnosed with GBS, CIDP, or MMN, if you support someone with these diagnoses, or if you need information and assistance, please contact us.
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